Anencephaly Awareness month.
When we found out about our daughter’s condition at our 18-week check-up, we had no idea what it was or even heard of Anencephaly. We immediately started looking up everything about it. There isn’t a whole lot out there about Anencephaly. It’s pretty straight forward when it comes to the diagnosis.
I believe It is our job to bring more awareness about Anencephaly so that that research can continue, and we can find answers to why this happens.
Anencephaly is a rare neural tube defect that only occurs in about 1 in per 5,000 to 10,000 births in the U.S. You can click this link to learn more about Anencephaly. https://dmpi.duke.edu/anencephaly
You can also donate to Anencephaly research by clicking this link https://www.gifts.duke.edu/dukehealth?designation=3912359